Medical Information Resources

The following organizations have information available, and conduct research. This list is not intended as an endorsement or a complete listing of all such organizations. For a list of companies that sell items such as large button phones, talking clocks, or computers with speech or large print output or other items which are helpful to persons who are visually impaired, please see our other resource lists.

American Academy of Ophthalmology

P.O. Box 7424
San Francisco, CA 94120-7424
(415) 561-8500
Fax: (415) 561-8533
customer_service@aao.org
www.aao.org/
This is a very informative website. Click on “For Patients and the Public” to find information and to search for an ophthalmologist. They are unable to answer individual questions about medical problems or conditions.

Association for Macular Diseases

210 E. 64th Street
New York, NY 10065
212-605-3719
To send e-mail, go to www.macula.org/contact-us
www.macula.org/
The Association for Macular Diseases offers support to individuals with macular disease, their caregivers, and the professional community. The Association provides resources and assistance while promoting research and education.

Council of Citizens with Low Vision International (CCLVI)

c/o American Council of the Blind
2200 Wilson Blvd., Suite 650
Arlington, VA 22201
800-733-2258
jim.jirak@cclvi.org
www.cclvi.org/
Has information on technology and services for individuals with low vision, advocates for the visually impaired, and publishes “Vision Access”, a quarterly magazine containing information on living with low vision.  “Vision Access” is available to members in large print, on cassette and via e-mail.  CCLVI's mentoring and peer counseling program, Project Insight, is for people who are newly visually impaired or losing more vision.  The program is available nationwide.  CCLVI advocates for low vision issues, provides information and referral, as well as scholarships for college students with visual acuity less than 20/70 or who are planning to provide low vision services.  Further information about CCLVI is available on the website.

Fight For Sight

381 Park Avenue South, Suite 809
New York, NY 10016
212-679-6060
Fight for Sight has supported and inspired eye and vision research by providing initial funds to promising scientists early in their careers.

The Foundation Fighting Blindness

7168 Columbia Gateway Drive, Suite 100
Columbia, MD 21046
Toll Free: 800-683-5555
410-423-0600
Regional Offices: http://www.blindness.org/index.php?option=com_content&view=article&id=67&Itemid=154
info@FightBlindness.org
www.blindness.org/
The urgent mission of the Foundation Fighting Blindness, Inc. is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.

Glaucoma Research Foundation

Glaucoma Research Foundation
251 Post Street, Suite 600
San Francisco, CA 94108
415-986-3162
Fax: 415-986-3763
grf@glaucoma.org
www.glaucoma.org/
The Glaucoma Research Foundation is a national non-profit organization dedicated to finding a cure for glaucoma. Their  mission is to prevent vision loss from glaucoma by investing in innovative research, education, and support.

The Macular Degeneration Center

The Wilmer Eye Institute
Johns Hopkins Hospital
600 N. Wolfe St.
Baltimore, MD 21287
Toll Free: 800-215-6467
410-614-6208
Fax: 410-614-7083
wilmerinfo@jhmi.edu
www.hopkinsmedicine.org/wilmer/services/mdc/
The Wilmer Eye Institute is committed to helping patients with age-related macular degeneration (AMD) and other macular degenerative diseases, through laboratory and clinical research and by improving the lifestyle of patients who are currently afflicted with these diseases. The Macular Degeneration Center provides a multidisciplinary approach in which scientists and clinicians with many different types of expertise work together toward the common goal of developing new treatments for macular degeneration. In addition to helping patients with AMD into the future by developing new treatments, it is the goal of the Center to provide additional support through our newsletter, support groups, and patient-oriented meetings.

Macular Degeneration Foundation

P.O. Box 531313 Henderson, Nevada 89053
888-633-3937
liz@eyesight.org
www.eyesight.org/
The Macular Degeneration Foundation is dedicated to those who have and will develop macular degeneration. We offer this growing community the latest information, news, hope and encouragement. Services include links to resources such as Low Vision Centers, Therapists, Physicians, and Support Groups in your area.
In addition, the Foundation gives financial support to researchers investigating treatments and others helping those coping with the challenges of living with the loss of their central vision.

Macular Degeneration International

800-683-5555
MDInfo@blindness.org
www.maculardegeneration.org/
Macular Degeneration International has become a support organization for The Foundation Fighting Blindness which combines the strength of The Foundation’s research mission to find treatments and cures for Macular Degeneration with MDI’s mission to help people lead independent and rewarding lives.
Being a support organization for The Foundation allows MDI to provide its constituents with up-to-the-minute research information without diverting us from our primary mission to help patients with Macular Degeneration live independent and productive lives. Members of MDI will receive The Foundation’s newsletters filled with information about research and clinical trials for Macular Degeneration. MDI will contribute to The Foundation’s newsletters with low-vision information.

The Macular Degeneration Partnership

6222 Wilshire Blvd., Suite 260
Los Angeles, CA 90048
310-623-4466
Fax: 310-623-1837
ContactUs@AMD.org
www.amd.org
They are dedicated to making sure that you and your family members have the best information available to you and all the tools you need to live well with AMD.

MD Support

3600 Blue Ridge Blvd.
Grandview, MO 64030
816-761-7080
director@mdsupport.org
www.mdsupport.org/
Macular Degeneration Support is a world-wide non-profit public service organization founded by retired educator Dan Roberts. Its mission is to provide information and support for people who are affected by macular degeneration and similar retinal diseases. Known more simply as MD Support, it is based on the Internet and also offers a public awareness program designed to reach people who are without Internet access.
Medical Breakthroughs
Reported by Ivanhoe
Medical News and Health Information.
www.ivanhoe.com/home/p_home.cfm
This website provides medical news on research, reports, and information about diseases.

National Eye Institute

Information Office
31 Center Drive MSC 2510
Bethesda, MD 20892-2510
301-496-5248
2020@nei.nih.gov
www.nei.nih.gov/
As part of the federal government's National Institutes of Health (NIH), the National Eye Institute's mission is to "conduct and support research, training, health information dissemination, and other programs with respect to blinding eye diseases, visual disorders, mechanisms of visual function, preservation of sight, and the special health problems and requirements of the blind."
 
The National Eye Institute's Office of Communication, Health Education, and Public Liaison respond directly to requests for information on eye diseases and vision research. This office cannot diagnose diseases, offer specific treatment recommendations, or provide physician referrals.

National Organization for Rare Disorders

55 Kenosia Avenue
Danbury, CT 06810
Toll Free: 800-999-6673 (voicemail only)
203-744-0100
TDD: 203-797-9590
Fax: 203-798-2291
To send e-mail, go to: http://www.rarediseases.org/about/contact-us
www.rarediseases.org/
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
 
NORD maintains three searchable databases and an alphabetical index of disease names. Reports are written in understandable language and can be printed from this website. Articles cover topics that are not currently included in NORD's Rare Disease Database. Abstracts of disease reports, and information about support organizations, are available free on this website.

Prevent Blindness America

211 W. Wacker Dr.
Suite 1700
Chicago, IL 60606
Toll Free: 800-331-2020
To send e-mail, go to http://www.preventblindness.net/site/survey?action_required=uri_action_user_requests&survey_id=1180
www.preventblindness.org/
Provides informational brochures on eye conditions, conducts public and professional education programs on prevention of blindness and maintains the Fight for Sight Research Center.

Quit Day

https://quitday.org/
E-mail: contact Sarah Delaney at sarah@quitday.org
At QuitDay, our mission is to help people add 10 healthy years to their lives.
https://quitday.org/

Research to Prevent Blindness

645 Madison Avenue, 21st. fl.
New York, NY 10022-1010
Toll Free: 800-621-0026
212-752-4333
inforequest@rpbusa.org
www.rpbusa.org/rpb/
Research to Prevent Blindness (RPB) is the leading voluntary health organization supporting eye research directed at the prevention, treatment or eradication of all diseases that threaten vision.

The Eye-Bank for Sight Restoration

120 Wall Street
New York, NY 10005-3902
212-742-9000
Fax: 212-269-3139
info@ebsr.org
http://eyedonation.org
Collects and distributes healthy donated corneas for transplantation.