BayLines

 

Fall/Winter, 2009

 

 

 

 

 

Bay State Council of the Blind

57 Grandview Avenue

Watertown, MA 02472

Phone: 617-923-4519

www.acb.org/baystate/

 

President, Bob Hachey

22 Grant Street

Waltham, MA 02453

Phone: 781-893-6251

E-mail: bhachey@comcast.net

 

Editor, Marcia Dresser

167 Green Street

Reading, MA 01867

Phone: 781-944-3586

E-mail: mn.dresser@verizon.net

 

Assistant Editors: Jerry Berrier, Sharon Strzalkowski, Steve Dresser, Judy Savageau

 

"BayLines" is published four times per year in large print, audio cassette, via e-mail, and on the Web.  Please contact the editor if you wish to request a change of format.  Deadlines for receiving material are February 15, May 15, August 15 and November 15.

 

BSCB E-mail Lists:

 

BSCB-L is an open and unmoderated e-mail list for discussion of topics of interest to BSCB members and friends.  To subscribe, send e-mail to bscb-l-subscribe@acb.org

 

BSCB-ANNOUNCE is a moderated one-way e-mail list used to disseminate pertinent announcements to members and friends of the Bay State Council of the Blind.  To subscribe, send an E-mail request to: jerry@birdblind.org


Table of Contents

Contents

Table of Contents. 3

Editor's Page. 3

President's Message By Bob Hachey. 3

These Skiers Need to Have a Vision By T.D. Thornton, Globe Correspondent December 25, 2008  8

Massachusetts Commemorates Birth of Louis Braille by Timothy Vernon. 10

Kramer's Kilometers. 12

Target Improves Point-of-Sale Equipment to Benefit Shoppers with Visual Impairments. 13

With disabilities no obstacle, school salutes its inspiration. 15

CVS/pharmacy Enhancing Accessibility for the Visually Impaired. 18

The Carroll Center for the Blind names Michael Festa as new President 19

Blind Community Leaders Applaud Trader Joe's Commitment to Improve  Point-of-Sale Equipment to Benefit Shoppers with Visual Impairments. 20

National Blind Sailing Championship Held By Dennis Brady. 21

Silent signals, hazardous crossings Advocates urge city to add, fix devices that aid the blind By Peter Schworm, Globe Staff  |  August 17, 2009. 22

Sony Pictures Home Entertainment Partners with WGBH Media Access Group. 25

MAVIS Co-Sponsors Legislation. 26

News from the Museum of Science. 26

Challenges Didn't Tarnish Beautiful Spirit 27

Paula Bress, recipient of the First CarrollKids Award. 28

OPTACON USERS UNITE TO PRESERVE VALUABLE READING DEVICE. 29

ACB Scholarship Announcement 30

BSCB Board Of Directors. 32

Committee Contacts. 32

Chapter Contacts. 34

 

 

Editor's Page

 

I hope you're as happy to receive this issue of BayLines as I am to finally bring it to you.  Yes, I know; it's been a very long time in coming.

 

I was planning to put out an issue back in March; to be honest, however, I didn't have enough material.  I decided to wait a while, and then, on May 1, I fell at work and broke my right arm above the elbow in three places.  Miraculously, the bones stayed aligned, so I didn't need surgery or a cast, but I did have to wear a sling for four months, and I'm still receiving physical therapy.  As you can imagine, I couldn't type while wearing a sling, and afterward, for a month or so, I couldn't type for more than about fifteen minutes without having shooting pain from my arm down to my hand.  (It was not fun!)  Now that I'm back to almost normal, I've had to juggle BayLines with my other responsibilities that I had to drop during the spring and summer.  Why didn't I ask for help?  Well, in hindsight, I should have.  As I always say, though, we're all volunteers around here, and I guess I was reluctant to ask other people to take on something that I had committed to completing. 

 

I'm not saying all this to complain; I just wanted you to know that I didn't fall off the planet.  I'm anxious to get BayLines back on schedule, and I really appreciate your patience and understanding.

 

This double issue of BayLines is packed with interesting articles by and about our members, spanning just about a year.  I know you'll enjoy it.  Cheryl Cumings and Dennis Brady are first-time contributors.  We’re always looking for new talent, so why not try your hand at writing an article?  Simply email your articles to me or, if you don’t have access to a computer, no problem; just send them to me in braille or on tape.  If you have an idea for an article but would rather not write it yourself, please get in touch with me, and we'll discuss it.  My email address is mn.dresser@verizon.net, and you can reach me by snail mail at 167 Green Street, Reading, MA 01867-2739.  You can also call me at (781) 944-3586.  I look forward to hearing from you!

 

In closing, I wish you Merry Christmas and Happy Hanukkah.  I hope your holidays bring you peace, joy, and fun!  May 2010 bring everything you hope for, and more. 

 

President's Message
By Bob Hachey

 

Hello everyone,

 

Welcome to the fall/winter 2009 edition of BayLines. Let me begin by apologizing for the lack of newsletters since last fall. Our editor sustained a major injury early in the spring and, looking back, I believe I could have done more to produce more issues of BayLines. And, I was informed that the newsletter was ready to go a few weeks ago and then came down with what I believe to be a case of the flu which has kept me in bed for the majority of the month of October which further delayed this issue. I encourage all of you to be especially vigilant regarding flu bugs during what looks to be a particularly bad flu season.

 

As usual, BSCB has been hard at work on a number of advocacy fronts. Back in February, Rick Morin, Jerry Berrier, Brian Charlson and I attended the American Council of the Blind Legislative Seminar. Once again, the two priority issues were the Pedestrian Safety Enhancement Act and the Twenty-first Century Video and Communications Accessibility Act. Both of these bills were refiled this year at the beginning of the new legislative session. (A new federal legislative session commences at the beginning of each odd numbered year.) 

 

The news is quite good regarding the Pedestrian Safety Enhancement Act. This bill would require the Department of Transportation to produce standards such that hybrid vehicles produce a sound to warn pedestrians and bicyclists of their presence when operating in electric mode which is much quieter than gasoline engines. This bill, H.R. 734, has well over 100 co-sponsors in the House of Representatives. Ed Markey, Michael Capuano, Jim McGovern, William Delahunt, Richard Neal and John Tierney from Massachusetts have signed onto this bill. If you live in the districts of one of these representatives, please contact their offices and thank them for supporting this legislation. If your representative has not yet signed on, please ask him or her to do so. The Capitol switchboard can be reached at 202-225-3121. This number is the easiest way to contact your federal representatives and senators.

 

In a related matter, a study of sounds produced by hybrid cars was recently conducted at the Perkins Braille and Talking Book Library to determine how well blind persons can hear hybrid cars in comparison to cars with gasoline-powered engines. This was a preliminary study and there will be more studies to come on this issue. Automobile manufacturers are already looking into adding sounds to their vehicles so that they will be more noticeable for pedestrians. I believe that with a bit more work, this bill will become law by the end of 2010.

 

The news on the Twenty-First Century Video and Communications Accessibility Act, sponsored by Ed Markey, H.R. 3101,  is not nearly as good. At this time there are only 19 co-sponsors. This bill was refiled at the end of June. Michael Capuano, Barney Frank, Jim McGovern and John Tierney were all co-sponsors during the previous legislative session. Unfortunately, there are no co-sponsors from Massachusetts for this bill at this time. And, there are no Republican co-sponsors at all. Please contact your representatives and urge that they co-sponsor this most important piece of legislation. Also, if you have any family members or good friends who live in Republican districts located in other states, please ask them to help us out on this one. If passed, this bill would require all video devices including DVD players, televisions, and cable and satellite boxes to be accessible via nonvisual means. The same would be true for cell phones. Finally, the bill would restore regulations regarding video description that were struck down by the federal courts in 2002.

 

There is one more piece of federal legislation that we are working on for this session. In 2004, in an effort to cut down on tax fraud, Congress passed a law limiting tax deductions for donated durable goods such as automobiles whose value is greater than $500.00 to the amount for which the vehicle was sold. This caused confusion, delays and a marked decrease in vehicle donations to nonprofits, including ACB and BSCB. In August of 2009, H.R. 571 was introduced by William Delahunt. This bill would amend the Internal Revenue Code to allow donors to deduct the "fair market value" of vehicles donated to charities up to $2,500.  Those who donate vehicles appraised prior to donation at more than $2,500 would be allowed a deduction at the time of donation equal to the appraised value of the vehicle. Please urge your representatives to sign onto H.R. 571.

 

Here in Massachusetts, BSCB continues to work hard on your behalf. This recession has caused major problems for those who must manage our state's budget. BSCB continues to ask that services to blind and visually impaired persons not be cut. It is my belief that during economic hard times, cutting services to persons with disabilities causes particular hardships. Is it the government's responsibility to protect the citizenry from the increased poverty caused by recessions such as the one we're in right now? I think that the answer is yes. When I'm asking that services not be cut, I sometimes feel like that Dutch boy with his finger in the dyke. Revenues are down again, and the governor is expected to lay off 2000 state employees and consolidate agencies. We will be asking all of you to help us to maintain quality services for our population.

 

Once again, we're trying to pass what has come to be known as the Prescription Bottle Label bill. S445 is sponsored by Senator Steven Baddour. If passed, this bill would require health insurance providers to cover the cost of making labels of prescription bottles accessible via voice recorder. This is a bill we've been working on for far too long, and the reason that we have failed thus far is that the extremely powerful health insurance lobby opposes new mandates for coverage. I believe that unless we can make a concerted effort on this one, we will fail once again. To me, this means a major event at the State House.

 

Earlier this year, BSCB collaborated with the Carroll Center for the Blind, Perkins School for the Blind, the Rehabilitation council of the Massachusetts Commission for the Blind and the National Federation of the Blind of Massachusetts on a very successful advocacy event. It was dubbed BLIND (Blindness Legislation Information and Networking Day). This event was well attended by the staffs of many state representatives and senators. Former MCB Commissioner David Govostes received an advocacy award for all of his good work on behalf of blind residents of the Commonwealth. Speakers represented a wide range of blind and visually impaired persons including students, working-age adults, the elderly and those new to blindness. This was a chance for us to educate the powers that be regarding the importance of blindness services such as those provided by MCB, Perkins and the Carroll Center. AT least 80 people made personal visits to the offices of their senators and representatives. We all agreed that this would be an annual event.

 

Anyone who is interested in working on any of the issues mentioned above should feel free to contact me.

 

BSCB continues to work on video description as it relates to television, movies and live performances. The list of movie theaters equipped with description continues to grow. If you've never attended a movie or live theater performance with description, I urge you to give it a try.

 

BSCB continues to work on structured negotiations with attorney Lainey Feingold. We're working on point of sale accessibility with companies such as Staples, CVS and Trader Joe's. If you have trouble using point of sale devices at stores or other places of business, please contact me. We've also been working with Major League Baseball to improve accessibility of their website.

 

BSCB continues to manage two email lists--a discussion list and an announcement list. Recent website issues caused a temporary interruption of these lists but they are now back up and running. Anyone interested in subscribing to either of these lists should contact me.

 

On the first Saturday of October, the BSCB Board of Directors spent the day discussing the future of BSCB and strategies to improve our organization. More details on this session will appear in the next issue of BayLines. The Board of Directors is always interested in ideas from our membership on what types of activities you think that BSCB  should work on. I encourage anyone with ideas to agree to work with us on possible implementation of your ideas.

 

Enjoy the rest of BayLines.

 

Congratulations to New BSCB Board Members!

 

At our spring convention back in March, we held election for the BSCB Board of Directors.  Kim Charlson was re-elected, and Kathy (Roach) Devin, Roz Rowley, and Sharon Strzalkowski joined the board.

 

We extend sincere and heartfelt thanks to Cheryl Cumings, Diane Fann, and Alison Roberts for their dedication and hard work on the BSCB Board.  We know that they will continue to contribute their great ideas and energy to our organization.

 

Several presentations from the spring convention, including those by ACB president Mitch Pomerantz, were broadcast on "Council Connection" during the past several months.  To listen, go to www.acb.org/baystate and follow the links to "Council Connection."       

 

Going to the Inauguration

by Cheryl Cumings

 

When Nelson Mandela came to visit Washington, D.C., I lived there and, for whatever reason, decided that I would not go to hear him speak.  I am not sure what made me think I would ever have another chance to hear him speak in person but the day Nelson Mandela came to Washington, D.C., I chose to go to work. 

This time, I decided that I would not make such a choice.  This time, I decided that I would go and be part of the inauguration of Barack Obama.

America had done the unexpected. People across the country had elected the most unlikely candidate to be President of the United States. People had elected someone who did not come from a dynastic family and who appears to understand what America means to its citizens and to people around the world.

I know that the election of Barack Obama does not mean that all racism is over in America. Nonetheless, I know that Barack Obama’s election does mean that there has been a fundamental shift in the way those of us who, because of our race and/or our disability are generally locked out of certain achievements, view our prospects.  This time, I wanted to be part of a celebration of our future, our hope and our potential.

I was fortunate that a friend from college lived in D.C. and had agreed that I could bunk out at his place during the inauguration. As it turned out, my Mom and six other people bunked out at his place. Although we did not have tickets for many of the formal events, we went to the Sunday concert on the mall.  Two people who lived in the building where we stayed agreed that we could join them on their walk over to the mall.

The night before the inauguration, we attended one formal event.  The Association for People with Disabilities and other disability groups held a ball at the National Press Club.  We went with a group of friends and had a wonderful time!  The keepsake from this event was a computer-generated photo of Barack Obama and Joe Biden.

The day of the inauguration, my Mom and I walked over to the mall. We had two goals: (one) to find a place where Mom could see the Jumbotron, and (two) to find a spot where I could hear what was happening.  We were fortunate and found seats on the wall surrounding the Washington Monument.  We met two wonderful ladies who were from Rochester, New York.  When they realized that I was blind, they took it upon themselves to describe what was going on.  They made sitting outside in thirty-something degrees for three and a half hours full of conversation and laughter. Through their description, I learned about the school group that was horsing around in front of us, the bad clothing choices made by some people walking in front of us, and the gradual increase in the number of people on the mall.

 The official start of the ceremony was announced in our area with a lot of cheering. People around us joined in the recitation of the Lord's Prayer. As Barack Obama took the oath of office, I felt amazed to be witnessing this event.  This is the country in which just 200 years ago, African-Americans were slaves. This was the country in which people were killed registering people to vote and where people had water hoses and dogs turned on them because they wanted to be recognized as full human beings with all the rights of an American citizen.

January 20, 2009 was a momentous day. It gives me courage to keep moving ahead irrespective of any negatives in my life. I am glad that this time I decided to skip work and to go to this event.

 

These Skiers Need to Have a Vision
By T.D. Thornton, Globe Correspondent
December 25, 2008

 

If you ask Marie Hennessy of Malden to tell a story that sums up the essence of one of the nation's oldest programs for blind cross-country skiers, her answer might surprise you. Instead of telling an exhilarating, outdoorsy tale about how New England Regional Ski For Light pairs sighted guides with visually impaired athletes, the organization's president instead points to the time dozens of members were on an overnight trip to Craftsbury, Vt., and the electricity at the inn went out.

 

"All of a sudden, the sighted guides couldn't see," said Hennessy, who has been blind since birth. "Our roles were reversed, and the visually impaired people were assisting the guides, because we know how to move around in a dark world. It was ironic, but at the same time, we had fun. In fact, nothing stops us from having fun."

 

Hennessy's positive outlook is echoed by other Ski For Light participants, who stress that the organization's main goal is not just to get adults with disabilities involved with physically demanding sports, but to provide those opportunities in an atmosphere of camaraderie that benefits both the sighted and the blind.

 

"One thing that Ski For Light has done for me is it makes me feel like a more complete person," said David Fisk, a volunteer guide from Thetford, Vt. "I think any type of volunteering helps a person be more complete."

 

Introducing visually impaired people to cross-country skiing dates back to the 1950s in Europe with a blind Norwegian musician named Erling Stordahl. His efforts led to the creation of an annual, week-long event called Ridderrenn in 1964, which has grown to attract thousands of disabled participants and guides from around the world to the mountains of Norway.

 

The Ridderrenn concept was brought to Colorado in 1975, and shortly thereafter morphed into a national organization known as Ski For Light. Two years later, when the annual event rotated to Woodstock, Vt., there was enough local momentum to form an offshoot branch so that activities could continue on a regular basis, and in 1977 New England became the first of what would expand to nine regional Ski For Light chapters.

 

Today, NERSFL doesn't rely solely on cross-country skiing to get its participants outdoors. In the winter, the group now also snowshoes. In warmer months, trips are planned for hiking, canoeing, and tandem bicycling. The organization has an itinerary of upcoming trips on its website (nersfl.org), where it actively recruits volunteer guides and visually impaired participants.

 

When it comes to first-timers, NERSFL members said it is usually the sighted guides, not the blind skiers, who feel a bit of anxiety the initial time they get paired up.

 

"Fear isn't one of my responses," said Cindy Wentz, who lives outside of Boston and has been legally blind since birth, although she does have some limited vision. "The first time on skis, I would say I probably had more of a feeling of 'Let's just go and jump into this with both feet.'"

 

Hennessy agreed. "I didn't have any trepidation. I felt totally comfortable," she said. "The guide who was with me had incredible patience. I knew I was going to trust this person, and he knew I wanted to make this work."

 

Fisk, who became a guide in 1994 and now trains the sighted volunteers who enter the NERSFL program, said he was initially "nervous about working with blind people." But he said he received valuable feedback from the more experienced visually impaired skiers, and that two-way communication made him a better guide.

 

"I just realized I had to give [blind people] a lot more credit than I was giving," Fisk said. "A lot of skiers with Ski For Light are good skiers. There are some who can ski any of the terrains they encounter."

 

Fisk said that when introducing a blind person to the sport, he will begin by explaining what each piece of equipment does with a hands-on demonstration. Guides and blind skiers are paired up on a one-to-one basis, and a lot of thought goes into matching the personalities and ability levels of the sighted and blind skiers.

 

On the trails, communication is the key to guiding a blind skier. "Tips left" and "tips right" are common commands, but rather than direct a skier's every movement, Fisk said a guide's primary function is to describe the lay of the land and to forewarn of any terrain changes. Whether the blind skier goes ahead of, behind, or next to the guide is a matter of individual preference.

 

The only emergency command that participants must obey is the "Sit down!" warning, Fisk said. Falling backward is the safest position for someone who can't see if they have to avoid an imminent obstacle.

 

"I spent a lot of time on my rear at first," Wentz joked.

 

Fisk said that when he trains guides, he often will have them ski blindfolded to simulate how someone without sight would negotiate a trail.

 

"It's incredibly difficult to judge your speed," Fisk said. "We rely so much on our visual cues for balance."

 

Teaching the basics of cross-country skiing is one thing. But helping blind athletes appreciate the aesthetics and raw beauty of nature while on the trails can be trickier.

"Almost all of it has to be verbal," Fisk said, although he will use the sense of touch to help visually impaired skiers distinguish various types of bark on trees or the difference between snow conditions. Hennessy recalled that a guide once took her outstretched arm and used it to "trace" a mountain range far off in the distance.

 

"I love stopping and just listening," said Wentz. She has enough sight, she explained, to tell that "the sky is blue," or what the trees look like in a "Monet kind of way." For her, "there's some visual, but you also rely on your other senses."

 

Hennessy said that well-meaning sighted people are sometimes hesitant to offer "too much information" out of fear that the blind person will become annoyed. But she appreciates it when the guides stop on the trail to enlighten her about things in nature that she can't see.

 

"Having someone take the time to think about what you might enjoy is a wonderful experience," Hennessy said.

 

"It's not about the destination, it's about the process," Wentz said. "It's a freedom of movement, which is hard to get in other areas of my life. When I walk [around the city] I need to concentrate on the next step and on my own safety. When I ski, all my mental energy is focused. I just remember being blown away the first time I did it."

 

Ski For Light is just as rewarding for the volunteer guides, too.

"It's a personal development thing for me," said Fisk. "And it's downright fun."

 

Massachusetts Commemorates Birth of Louis Braille
by Timothy Vernon

 

On Wednesday, January 14, 2009, about 100 people gathered at the Massachusetts State House to promote braille literacy and honor the 200th anniversary of the birth of its inventor, Louis Braille. The day was filled with exhibits by vendors, visits from legislative leaders, and a presentation to showcase the extreme value of braille.

 

One of the most popular exhibits, which was on display at the State House for nearly two weeks, was a collage of ten panels depicting the life of Louis Braille. These panels, developed by National Braille Press, chronicled Braille’s life from his birth on January 4, 1809, through his invention of braille, to his death on January 6, 1852. This exhibit will travel the country throughout 2009 to increase public awareness of Louis Braille’s life, and showcase the vitality of braille today. To view the entire exhibit, please visit

http://www.nbp.org/ic/nbp/louis/louis_tour.html.

 

Another popular exhibitor was Perkins School for the Blind, whose staff brought the new Next Generation™ Perkins Brailler®. Attendees were provided a brief description of the brailler’s layout, and had the opportunity to try the machine for themselves. Its lighter weight and quieter sound have made this machine quite popular.

 

At 2:00, attendees assembled near the grand staircase for the ceremony. Several state representatives and senators attended the gathering, including Senator Therese Murray, President of the Massachusetts Senate, who brought greetings from the legislature. “Giving anyone the tools to read is giving them the opportunity to have advantages and experiences they may never have dreamed of before,” Murray said. Governor Deval Patrick was unable to attend the event, but his proclamation declaring January as Braille Literacy Month was read in braille by Avana Morris, a 10th-grade honors student at Lynn English High School.

 

Other speakers at the ceremony included Paul Parravano, Director of Government Relations at the Massachusetts Institute of Technology and chairman of the National Braille Press Board of Directors; Janet LaBreck, Commissioner, Massachusetts Commission for the Blind; Paula Bress, teacher of the visually impaired and representative for the Association of Massachusetts Educators of Students with Visual Impairments; Dr. Karen Ross, Vice President of Education Services, Carroll Center for the Blind; and Kim Charlson, Director, Perkins Braille and Talking Book Library. Paul Parravano spoke on the importance of and continued need for braille literacy. “I think of Louis Braille as the king of independence for blind people,” Parravano stated. “Without the foundation of braille knowledge, full independence and thorough educational opportunity does not exist.”

 

To commemorate the 200th anniversary of the birth of Louis Braille, the Perkins Braille and Talking Book Library sponsored an essay contest focused on the topic “how braille has made an impact on my way of life.” During the ceremony, Kim Charlson recognized the three essay winners: Kayla Bentas, Samantha Lylis, and Timothy Vernon. “Our three recipients today truly exemplify what braille literacy can provide to people who are blind: knowledge, self-esteem, independence, and empowerment,” Mrs. Charlson stated. All of the winners were present at the ceremony to receive a certificate, and a $100 cash prize presented jointly by the library and Perkins.

 

Kayla Bentas, 17, is a senior at Peabody Veterans Memorial High School in Peabody, Massachusetts. At the age of nine, Kayla became blind as a result of a brain tumor, but this life-changing experience did not dampen her positive spirit. She immediately embraced learning braille, and enjoyed sharing her new knowledge with family members and friends. An entrepreneur, she has formed “Kayla’s Vision,” a non-profit foundation dedicated to helping visually impaired people acquire assistive technology. She plans to major in business management at college next fall.  [Kayla now attends Suffolk University in Boston.]

 

Samantha Lylis, 19, is a secondary school student at Perkins School for the Blind. A resident of Merrimack, New Hampshire, she has not only mastered English braille, but is fluent in the French and Spanish codes as well.

 

Timothy Vernon, 25, resides in Mansfield, Massachusetts. As a result of his knowledge of braille, Vernon was named to the Dean’s List each semester at Fitchburg State College, and uses braille daily in his job as a customer service representative at NSTAR Electric and Gas. “Tim is a great asset to NSTAR and exemplifies what a customer service representative should be,” said Tony Simas, Director of NSTAR’s Customer Interaction Center, in a media release. “He is extremely customer-focused and is sensitive to the needs of our diverse customer population."

 

The Braille Literacy Celebration stressed the major importance of braille communication today. Teachers, parents, students and professionals all urged continued support for braille literacy as a high priority.

 

Kramer's Kilometers

 

We Really Went to Needham

by Kramer The K9

 

(Note to readers: I am an eight-and-a-half-year-young black Lab Seeing Eye graduate. My job is keeping my partner, John Usinas, safe while he explores the byways in and around our state and reporting on his travels to my readers. John is a client advocate who is employed by the Massachusetts Commission for the Blind.)

 

As you may remember in my last Kilometers, I mentioned that the boss was a bit confused as to what town we were supposed to be in. He thought it was Needham when in fact it was Walpole, but then he is, as we canines say, "after all only human!"

 

I am pleased to report that even though that "rodent" saw his shadow last month and cursed us with more snow, things are improving!  The days are staying brighter much longer and the sun is warming things a little more and I have been able to find some grass in our back yard.

 

Our recent trip was to the John Elliot School in Needham, where John thought it was,  so we were off to a good start.  My favorite driver, Suzanne, had my blanket freshly washed and spread out on the back seat and I rode in comfort while she dodged the many potholes that destroy the roads at this time of year.

 

We arrived at the school in time to meet our speaker contact, Stacy, and chat before class started. Suzanne reminded John of the first time we were here and the office lady asked if he was there to sign up for kindergarten.  Now I know John likes to think he looks young, but remember, the poor guy can't see his reflection; however, the memory was still good for a few laughs.

 

We soon started in our first class of first graders and Stacy introduced John and me. I, of course, having heard his story many times, laid down to take a nap, but was soon made to stand up so he could explain how he uses my harness to follow me. He then pointed out the dangers of distracting me while I am supposed to be watching out for his safety.

I laid down again and John went on to tell the class about the different types of blindness and how he and others use guide dogs, canes and sighted guides to get around.

He next demonstrated all his devices and as usual started to crack up when the Parrot Voice Mate would not give him the number for the school. It took a few minutes for everyone, teachers included, to stop laughing so he could regain his composure and try again. The Voice Mate finally gave him the correct information and he went on to demonstrate his Coloreano and other talking and information identifying devices, including his new KNFB Reader. Part of those demonstrations included a message using the talking computer voice he tape recorded to let the kids hear what it sounds like. The embarrassing thing is that I am snoring in the background and the kids got hysterical when they heard it!

 

After each presentation, John takes questions from the kids and teachers and does his best to answer in a way the kids can understand.  As usual, a few kids told stories about their dogs, but there were also many good questions, which showed that the kids had been discussing blindness before we arrived.

 

Just before we left, John asked the kids for a favor. He asked them to tell their parents that a "man who was blind" was at their school, not "a blind man."  He then explained that he preferred to put the person first and not the disability because the person always is most important and not the disability! We then left to a round of applause and a request to come back again next year.

 

Well, it's time for another nap, so until next time, Woof Woof!        

 

Target Improves Point-of-Sale Equipment to Benefit Shoppers with Visual Impairments

MINNEAPOLIS, May 14, 2009: The American Foundation for the Blind (AFB),
American Council of the Blind (ACB), California Council of the Blind (CCB)
and Target (NYSE:TGT) announced today that the organizations have
collaborated to improve the Target checkout experience of guests with visual
impairments and ensure their privacy. The AFB, ACB and CCB applaud Target's
efforts and urge other retailers to follow its example.

Point-of-Sale Improvements

Target will add tactile keypads to point-of-sale devices at all Target
stores. This improvement allows shoppers who have visual impairments or
difficulty reading information on a touch screen to privately and
independently enter their personal identification number (PIN), protecting
their financial privacy.

 
The devices feature keys arranged like a standard telephone keypad and work
in conjunction with Target's current point-of-sale terminals. All Target
stores in California will have the new devices by December 2009, and keypads
will be installed in all Target stores nationwide by the end of 2010.

 
Mitch Pomerantz, president of the American Council of the Blind, praised
Target's commitment. "I applaud Target, one of the largest national
retailers, for making these equipment changes that recognize that blind and
visually impaired customers must have the same level of privacy and security
when making purchases as our sighted peers. In this era of rampant identity
theft, the ability to use tactile point-of-sale devices is crucial."

 
Ann Marie Janke, vice president, Target Technology Services, Guest
Development, said, "Target is committed to providing an exceptional
experience and fostering an inclusive shopping environment for all our
guests. We are eager to make changes to our point-of-sale keypads that will
enhance the guest experience and ensure the privacy protection of our
visually impaired guests."

Felecia Fields climbed the steps to the Patrick O’Hearn Elementary School reluctantly, a million questions swirling in her mind. If she chose the O’Hearn for her son, would the children tease him because he has cerebral palsy? Would the teachers ignore him?

Inside, the hallways bustled with students changing classes. She spotted one child pushing another in a wheelchair, and then there was a student using a walker. In the center of the hallway stood the school’s principal, William Henderson, with a white walking stick, exclaiming: “Welcome to the O’Hearn School."

With that, Fields’s anxiety vanished.

For 20 years, Henderson, 59, who is blind, has put the fears of countless parents to rest, as he transformed the Dorchester school into a national model for teaching students with disabilities within mainstream classrooms. The practice - revolutionary two decades ago - attracted the attention of the US Department of Education and a host of news crews, including television anchor Katie Couric, who did a story in the mid-1990s.

This afternoon, staff, students, parents, and Mayor Thomas M. Menino will gather to present the highest of honors to the principal upon his retirement: The school, just a few blocks from his home, will be renamed the William Henderson Elementary School. It is a fitting tribute, they say, for a pioneer who has improved the lives of thousands of children.

“He’s a rock star," said Bridget Curd, a parent who cochairs the school site council. “Many schools across the country and across the world have come to the Patrick O’Hearn School to see how students with severe special needs learn side-by-side with other children."

The ceremony has been in the making for months. A group of parents and teachers hatched the idea in January of the renaming, which required a public hearing and a School Committee vote. …

Students say the school will not be the same without him.

“I feel really sad," said 7-year-old Leila Stella, a first-grader, as she made a Snow White puppet out of felt and construction paper. “We really love our principal."

At the O’Hearn, a third of the 230 students have been identified for special education services. The school teaches some of the city’s most severely disabled students, including those with autism, cerebral palsy, and Down syndrome, in classrooms with other students.

Before Henderson began the transformation of the O’Hearn in 1989 at the request of school district leaders, students with disabilities would have been taught in segregated classrooms. Only a handful of other city schools have followed the O’Hearn’s lead, much to the dismay of special education advocates.

“Boston has far too many kids in segregated classrooms and not enough schools like the O’Hearn," said Thomas Hehir, a professor at Harvard University’s Graduate School of Education and a former director of the US Department of Education’s Office of Special Education Programs. “The O’Hearn is one of the few schools in urban America that demonstrates all students can succeed."

Achieving success took more than just plopping these children in the classroom. Teachers had to overhaul lesson plans. Classmates had to learn tolerance and empathy, and gain a sense of when to jump in and help a disabled student with a class project or merely open a door for a child using a walker or wheelchair.

A great unifying theme of the school has been the arts, in which self-expression often puts children of all abilities on a level playing field. One of the first projects students created at the reinvented school 20 years ago was a colorful mosaic featuring a child in a wheelchair in between a standing girl and a boy. Last month, in “The Sound of Music," a girl with Down syndrome played a major role.

In leading the transformation of the O’Hearn, Henderson also has broken stereotypes about what people with disabilities can achieve in the workplace. Henderson - who has retinitis pigmentosa, a gradual deterioration of the retina - started losing his peripheral vision when he was 12. He is now blind, although sometimes able to see shapes and bright colors.

In his early years in the Boston system, Henderson, a Yale graduate, worked as a bilingual teacher at the Hernández School, later advancing to assistant principal. During that time, his sight grew so bad that his doctor told him to give up working and take early retirement. It was a crushing turn of events for Henderson, who thought he would keep his eyesight until 60.

But Henderson stuck with his career, earning a doctorate at the University of Massachusetts.

“I feel blessed and privileged to have worked in the Boston public schools for 36 years," Henderson said, when interviewed about his impending retirement.

For first-time visitors to the O’Hearn, it is not always apparent that Henderson is blind. His blue eyes make eye contact. If he is sitting behind his desk, he sometimes grabs a small pad of white paper and uses visual memory to draw an object to stress a point or to write down a phone number. He says it is no different from writing with one’s eyes shut.

In the autumn, he can be spotted raking leaves in the school’s courtyard, and in the winter, shoveling the sidewalks.

When walking, though, he leads with his red-tipped stick, often moving at a quick clip. Henderson is a runner, hiker, kayaker, and bicyclist. As he navigates the hallways, he greets students by name, recognizing their voices. For students who don’t speak up when they see him, Henderson asks who’s there.

After his retirement, Henderson plans on consulting with VSA Arts of Massachusetts, a nonprofit that works with schools on teaching students of all abilities through the arts. The organization has partnered with the O’Hearn for 20 years.

In his new role, Henderson will even find himself back at the O’Hearn from time to time.

“There’s no winding down or coasting when you work with children," Henderson said. “Schools are like relationships. You have to keep working at it and improving it. You can’t get stale or you will fail. … You learn in life to build on successes."

 

CVS/pharmacy Enhancing Accessibility for the Visually Impaired

 

Wonsocket, R.I., July 30, 2009:  CVS/pharmacy, the nation’s largest retail pharmacy, announced today that it is implementing functional improvements to benefit its customers with visual impairments and other disabilities.  The company has installed tactile keypads in all CVS stores and it will enhance its website in 2009.  

 

Today’s announcement is the result of a collaboration between CVS/pharmacy, the American Foundation for the Blind, American Council of the Blind and California Council of the Blind.  CVS/pharmacy’s actions were applauded by these groups.

 

“We are pleased to collaborate with organizations committed to advocacy for the blind and introduce service enhancements in our stores and online that will increase access for our visually impaired customers,” said Helena Foulkes, Executive Vice President and Chief Marketing Officer of CVS Caremark. 

 

Point-of-Sale Improvements

CVS/pharmacy’s point-of-sale improvements are designed to assist customers who cannot read information on a flat-screen point-of-sale device and therefore cannot privately enter their PIN or other confidential information.  All CVS stores have been equipped, at a minimum, with a tactile device at both the front check-out counter and the pharmacy counter to ensure that customers unable to use a flat-screen keypad do not have to provide their PIN to a store employee.  The company is also training its store employees to provide appropriate interaction with visually impaired customers regarding the use of the new tactile devices.

 

“Without tactile keys, blind and visually impaired people have no choice but to share their PINs with strangers,” explained Melanie Brunson, executive director of the American Council of the Blind.  “Today’s announcement, and the collaboration that led to it, demonstrates CVS/pharmacy’s ongoing commitment to its blind and visually impaired customers.”

 

Web Site Access

The initiative includes CVS/pharmacy’s commitment to ensure that its online pharmacy, www.cvs.com, is accessible to persons with a wide range of disabilities, including blind computer users who use a screen reader or magnification technology on their computers and those who rely on a keyboard instead of a mouse.  CVS.com will implement these enhancements by the end of 2009. 

 

“An accessible web site is crucial if people with vision loss are to obtain goods, services and information on an equal footing,” said Paul Schroeder, vice president, programs and policy group of the American Foundation for the Blind.  “We appreciate CVS/pharmacy’s commitment to ensure that CVS.com is usable by the broadest range of online consumers, including those who have disabilities.”

 

About CVS/pharmacy

CVS/pharmacy, the retail division of CVS Caremark Corporation (NYSE: CVS), is America's largest retail pharmacy with more than 6,900 CVS/pharmacy and Longs Drugs store locations. CVS/pharmacy is committed to improving the lives of those we serve by making innovative and high-quality health and pharmacy services safe, affordable and easy to access, both in its stores and online at CVS.com. General information about CVS/pharmacy and CVS Caremark is available at www.cvscaremark.com.

 

The Carroll Center for the Blind names Michael Festa as new President

 

Michael E. Festa of Melrose has been selected as the next President of the Carroll Center for the Blind, a national provider of rehabilitation and educational services. Festa succeeds Rachel Rosenbaum, who has been the Carroll Center’s chief executive officer since 1976, and a national influence on services for blind persons.

 

Festa will be charged with leading a capital campaign to raise $5 million, half of which will go towards expanding CarrollTech, an online series of courses and programs for blind and visually impaired persons, while the other half will be set aside for an endowment to better provide rehabilitation training for newly blinded adults and educational services for blind children.

 

CarrollTech was developed in 2003 to meet the continued barriers blind persons face with regard to cost of training, difficulty in travel and the wide availability of qualified instructors. CarrollTech aims to meet those challenges and to expand the reach and availability of services for students of all ages across the globe.

 

To honor the achievements and developments in adaptive technology training by the retiring Rosenbaum, the facility’s technology center is being named the “Rachel E. Rosenbaum Technology Center” at the Carroll Center for the Blind. As one of the foremost leaders for the blind, she earned the AFB Migel Medal, the highest honor in the profession. In September, she received the Braille Institute of America’s 2009 Reflections Award, which recognizes leadership and uncommon achievement by an individual, corporation, foundation or group that furthers the understanding of sight loss and the capabilities of people who are blind or visually impaired.

 

"The Carroll Center for the Blind’s face to face computer training at our Newton facility serves approximately 100 individuals a year,” said Festa. “However, more than double that number of students is served annually through CarrollTech’s online training. With additional online courses, we can provide training to more individuals at a lower cost per individual, but funding is needed to design the courseware adapted for blind and visually impaired persons.”

 

Festa is a practicing attorney and served in the Massachusetts House of Representatives from 1999-2007, where he spearheaded the passage of the “Equal Choice for Senior and Disabled Persons” law. The law, which Festa collaborated on with advocates from the senior and disability communities along with interests in the long term care provider community to get passed, resulted in a fundamental shift in the use of long-term care dollars from an institutional bias to one that promotes independence in the home and community. More recently he has served as the Secretary of the Executive Office Elder Affairs for the Commonwealth of Massachusetts, where he continued to promote innovative opportunities for seniors to live more independently in the community. …

 

Blind Community Leaders Applaud Trader Joe's Commitment to Improve
Point-of-Sale Equipment to Benefit Shoppers with Visual Impairments


Sacramento, Calif., August 19, 2009 - The American Council of the Blind (ACB),
the California Council of the Blind (CCB) and the American Foundation for the Blind (AFB) announced today that they have collaborated with Trader Joe's to improve the checkout experience of guests with visual impairments and help ensure their privacy.  The AFB, ACB, and CCB applaud Trader Joe's efforts.
 
Trader Joe's has added tactile keypads to point-of-sale devices at all their
locations.  The new improvements allow shoppers who have visual impairments
or difficulty reading information on a touch screen to privately and independently enter their personal identification number (PIN), protecting their financial privacy.

 

"Trader Joe's is a very popular store for the thousands of ACB and CCB members across the country," said Jeff Thom, president of the CCB.  "Today's announcement is just one more example of the company's dedication to customer service."

 

Trader Joe's operates more than 325 stores in 25 states [including Massachusetts] and the District of Columbia.

 

National Blind Sailing Championship Held
By Dennis Brady

 

The 2009 National Blind Sailing Championship was held on Tuesday, August 25th through Thursday August 27th at the facilities of Sail Newport located at Fort Adams State Park in Newport Rhode Island.  For the second year, this event was held in conjunction with the C. Thomas Claget Jr. Memorial Regatta, which has become a showcase event for sailors with other disabilities, and featured sailors who have competed in previous Paralympics competitions.  Also, this is the first year that the championship was run as a 3-day competition, which allowed the blind competitors to have another day of competition and receive their awards along with the winners of the other disability classes. 

 

There were seven  teams, or crews, that competed in this year’s event.  There were five teams organized by the Sail Blind program at the Carroll Center for the Blind, along with one team each from California and Florida.  The blind competitors used J/22 series boats and competed in 11 races over the three-day period.  A twelfth race, (the last one on the 3rd day), was abandoned because the wind had totally died at that point, rendering any chance to finish the race virtually impossible.   

 

Each crew consists of two blind sailors and two sighted sailors.  One sighted sailor is at the stern of the boat to guide the helmsman, and the other is at the bow to work with the jib man. The helmsman is also responsible for operating the main sheet.  All of the major sailing functions are supposed to be performed by the blind sailors, acting on instructions or commands of the sighted guides.

 

The competitors had to deal with varied wind conditions off the coast of Newport.  On the first day of competition, the winds were so light at one point that there was a 2 hour wait before races could resume.  On the second day, the winds were in the 15 to 20 knot range all day, which created different challenges.  On the third day, we had Newport in reverse; that is, there was a 12 knot breeze to start things off, but as each race was finished, the breezes were failing until there was basically no breeze left, forcing the race committee to end all competition at that point. 

 

The top three teams were recognized at the closing ceremonies.  Under the rules of sailing, the point scoring is almost like golf.  In other words, the higher you finish, the lower your point score, and the lowest team score wins. 

 

Third place went to the team of Ryck Lent and Mark Bos, with sighted guides Arthur O’Neil and David Gilman.  David is a member of the Sharon High School sailing team and is 17 years old. 

 

Second place went to the team from Florida, JP Creignou and Jan Bartleson, with sighted guides Diane Fowler and David Bannister.  This team was sponsored by Team Paradise.

 

For the second year in a row, the winner and national blind sailing champion is the team of Sengil Inkiala and Nancy Jodoin, with sighted guides Ken Legler and Naomi Swhom.  Ken Legler has been a long-time guide with the Sail Blind program and is the coach of the Tufts University sailing team.  He is considered to be one of the top-notch sailing coaches in the nation.  Fifteen-year-old Naomi Swhom is another member of the Sharon High School sailing team. Also assisting as a guide on an occasional pinch-hit basis was Mike Dinning, a member of the Natick High School sailing team.

 

Other competitions included 3-man crews operating Sonar-23 boats, 2-man teams operating Skud-18 boats, and a 2.4 meter class of boats operated by a single person.  All sailors in each of these classes must have a disability.

 

The sanctioning body for this event was U.S. Sailing, which is the governing body for sailing in the U.S. 

 

As yet, there has been no date set for the Clagett 2010event.  The only thing for certain is that the Carroll Center teams will resume practice runs next May at the Courageous Sailing Center in Charlestown to get ready for yet another year of sailing competition.

 

Silent signals, hazardous crossings
Advocates urge city to add, fix devices that aid the blind
By Peter Schworm, Globe Staff  |  August 17, 2009

 

Yakir Arbib is blind. He is also a promising young pianist who daily negotiates the Green Line and busy urban streets on his way to study at the Berklee College of Music. None of it daunts him, except the congested crossroads at Massachusetts Avenue and Boylston Street.

The chirping of an audible crossing signal is supposed to alert him and other visually impaired pedestrians when it is safe to cross the traffic-choked street, but for several weeks the signal hasn’t worked.

 

“I wait for some nice person, or I take a chance," the Israeli native said. “I don’t know how I’m going to get around having to cross that street. I think I’ll have to find a different way."

 

Just blocks away, at Fairfield Street and Commonwealth Avenue, another audible signal for the blind was not functioning properly. Advocates for the blind say that at any given time, a significant number of Boston’s 40 audible intersections work poorly or not at all, and they accuse the city of making maintenance a low priority.

Further, they say, Boston has lagged [behind] other major cities in making its streets more navigable for the visually impaired, noting that it has failed to heed federal recommendations that urge cities to install audible crosswalk signals at new or upgraded intersections. Most glaring, they say, is that more than 100 intersections created as part of the Big Dig lack the devices.

 

“In terms of accessibility, Boston is behind the eight ball," said Bob Hachey, president of Bay State Council of the Blind. “It has not done itself proud. It’s been like getting blood from a stone."

 

City officials say they install new signals almost exclusively based on requests from individuals and the state Commission for the Blind, which also fields complaints and requests. They said they are doing their best to keep signals working properly but would be able to address problems quicker if pedestrians notify officials.

“I can see why it would be incredibly frustrating to pedestrians who rely on them," said Jim Gillooly, deputy commissioner of the Boston Transportation Department, which is responsible for installation and maintenance. “We really rely on people who use these signals to let us know if they aren’t working. If we know about them, we’ll get them fixed."

 

Gillooly said his office has not received many complaints about faulty signals, adding that people should report problems for quicker results.

 

But advocates say the audible signals are often on the blink for weeks, in Boston as well as neighboring communities, making some of the area’s busiest intersections feel like a roll of the dice.

“We all have crossings that we call `pray and go`," said Pauline Downing, a Somerville resident who is blind. She is the former president of Guide Dog Users of Massachusetts.

 

Hachey, of the Bay State Council of the Blind, with a German shepherd as his guide, visited the Massachusetts Avenue/Boylston Street intersection one day last week to document problems. When working properly, the chirping signal is supposed to sound for pedestrians walking in either direction in all four crosswalks - a total of eight audible signals - but as Hachey tested them, five failed to activate. A separate audible cue at the intersection, designed to help blind people locate the walk buttons, was drowned out by heavy morning traffic.

“That’s useless," he said. “It’s far too low given the ambient noise."

 

He spoke into a recorder to remind himself to notify the state Commission for the Blind about the problem.

 

“Absolutely no audible signal," he said.

 

To many who are visually impaired, signals that don’t work are an added irritation to their complaint that the city has been slow to install more audible signals. Some have asserted the city is bound by the Americans with Disabilities Act to put in signals at new and upgraded intersections, such as those created by the Big Dig. But Boston transportation officials say they are not legally obligated by the act and note that the systems can cost more than $10,000.

Jessie Lorenz, director of public policy for San Francisco’s LightHouse for the Blind and Visually Impaired, which two years aho successfully lobbied the city to install accessible signals at some 80 intersections, said that while the question has not come before a court, federal transportation officials are recommending that new road projects include accessible signals, and local leaders are beginning to take note.

 

Not all advocates for the blind press for more signals, and some even suggest it’s unreasonable to expect audible signals at every intersection, saying vision-impaired pedestrians should not become reliant on them.

 

“We have not tended to endorse audible traffic signals," said Chris Danielsen, spokesman for the National Federation of the Blind. “We believe a blind person should learn cane travel techniques, and part of that is learning to hear the traffic patterns."

The relative scarcity of the devices, Danielsen said, and the risk of malfunction demonstrate their limits.

But complicating that view is the growing prevalence of quiet cars, especially hybrids, which can have virtually no engine noise at slow speeds. Some say they pose safety risks for those relying on senses other than sight. The federation is lobbying for federal legislation mandating cars meet certain decibel requirements.

“Vehicles should emit a minimum level of sound so that all pedestrians are safe," Danielsen said. “Blind people need to hear the sound to determine speed and direction of the traffic."

But other visually impaired people say audible signals are the key, and that cities like Boston need to make a priority of installing new ones and keeping them working.

“You get excited initially when there’s a new one. They give you peace of mind," said Tim Cumings, a Brighton resident who is blind. “But then they don’t work from one day to the next."

 

Sony Pictures Home Entertainment Partners with WGBH Media Access Group

 
Culver City, Calif. (Sept 3, 2009) – Sony Pictures Home Entertainment will partner with WGBH Media Access Group to release select film titles on DVD with Descriptive Video Service®, or DVS® as an optional feature for audiences who are blind or have low vision.  Descriptive Video Service provides carefully crafted narration of key visual elements inserted into natural pauses in dialogue. Key visual elements are those which viewers with vision loss would ordinarily miss and include actions, costumes, gestures, facial expressions, scene changes and onscreen text. On DVD and Blu-ray™, the DVS track is an Audio option, listed alongside alternative languages, where the menu selection will read “English Audio Descriptive Service.”


The ability to enjoy movies with descriptive narration on DVD and Blu-ray Disc™ is extremely important to the nation’s 12 million movie fans with vision loss, and is the single most requested service of the Media Access Group. Among the first Sony Pictures Home Entertainment titles to be released with the description feature are The Taking of Pelham 123, The Ugly Truth, Julie & Julia and District 9.

Sony Pictures has been a leader over the last decade in providing descriptive audio for theatrical releases in movie theaters equipped with WGBH’s Motion Picture Access, or MoPix® systems. Beginning in the fall of 2009, all Sony Pictures theatrical releases with descriptive audio will also include the feature when they arrive on DVD and Blu-ray Disc.

MAVIS Co-Sponsors Legislation

by Kevin Heaton

 

Three years ago, the Boston Center for Independent Living and Easter Seals of Massachusetts co-organized an advocacy group for young people with disabilities, known now as Act Today Influence Tomorrow. Each year members choose an issue to work on, and this year the group decided to advocate for the inclusion of disability history in the education of all Massachusetts' students. With Senator Steve Tolman and Representative Barbara L'Italien as our lead sponsors, we filed our Disability History and Awareness Month bill with the legislature in January of this year.  Eight months and a whirlwind later, Governor Patrick signed our bill into law.

 

Below is the timeline of our

campaign.

 

 

01/15/09: Bill was filed.

 

04/09: Bill was assigned a bill number.

 

05/09: Bill was assigned to the Joint Committee on State Administration and

Regulatory Oversight Committee.

 

06/08/09: Youth Leadership Forum participants spoke to their legislators in support of S. 1469 and held a rally in support of a Disability History Month.

 

07/16/09: The Joint Committee on State Administration and Regulatory Oversight held a public hearing at which, after hearing amazing testimony, they voted in session to move the bill to the Senate.

 

 

07/23/09: S. 1469 was Referred to Senate Committee on Ethics and Rules.

 

07/28/09: Senate Committee on Ethics and Rules Passed to be engrossed (35/0), [sic] so it was moved on to its third reading.

 

7/30/09: House moved S. Bill 1469 through to a third hearing.

 

8/4/09: Passed both Senate and House and was in line for an enactment

vote.

 

09/09: Governor Patrick signed S. Bill 1469 into law.

 

Congratulations to everyone involved in this initiative!

 

News from the Museum of Science

 

This fall, the Museum of Science, Boston presents an exciting range of new exhibits, programs, and events to inspire curious minds of all ages--and for every budget. The Free Film Fridays program invites guests to travel to Antarctica or dive into the Deep Sea at no cost. Free lectures encourage visitors to explore the effects of music on human health and complement the new exhibit Wild Music: Sounds & Songs of Life, which is included with Exhibit Halls admission.

Don't miss the East Coast premiere of Harry Potter: The Exhibition.

 

Challenges Didn't Tarnish Beautiful Spirit

 

Dianne Williamson
dwilliamson@telegram.com

 

Oct 8, 2009

Worcester Telegram

 

Walter Crockett was playing for the popular band Zonkaraz at Clark University's spree day when, as he recalled, “I looked around to see whose eye was worth catching.”

Not surprisingly, he settled on the gorgeous green eyes of Valerie Orchinik, a stunning student with a striking smile and breezy way of dancing. That same night, Walter took Valerie to a friend's house and played all of his songs for her. She liked them, a lot.

Within two months they were living together in a three-decker on Maywood Street, but not everyone was thrilled with their relationship. Valerie's dad, in particular, tried to talk her out of marrying Walter — she was a 20-year-old junior with promising prospects; he was a 30-year-old musician with long hair.

“Her father told her she could meet someone much better looking than me,” Walter said.

Luckily for Walter and music fans throughout New England, Valerie ignored her dad's advice and married him in June 1979, a year after she graduated from Clark and shortly after Walter overheard her singing in the kitchen and was delighted to learn that the woman he loved was blessed with an evocative alto voice.

Walter and Valerie — you rarely said one name without the other — would make beautiful music together for 30 years, until she was silenced Sunday night after a three-year battle with cancer. It was a tragic loss and, on one level, the Crocketts have been cursed with more than their share of pain, from their daughter's brain tumor to Walter's prostate cancer and, now, Valerie's death at 53.

But that's only part of their story. Nine years ago, when I wrote about Emily's tumor, Valerie dismissed any notion that the family deserved sympathy.

“We have a wonderful life,” she said. “We tend to focus on our blessings rather than challenges.”

They've had both in spades. In fall 1978, the couple formed the band Crockett, and later the Oxymorons. They played their original music — an appealing mix of bluegrass, folk and rock — at clubs and coffeehouses throughout New England. Valerie's voice was strong and lovely, whether singing lead vocals or harmony.

“We all wanted what they had,” said Paul Della Valle, a friend who will eulogize Valerie at her memorial Saturday. “It wasn't just the harmony when they were singing — their lives were in perfect harmony. It's a cliché, but they had what no money could buy. Everyone was in love with Valerie, and Valerie was in love with Walter.”

The couple had two children, Jackson and Emily, who wasn't expected to see her 10th birthday when she was diagnosed in childhood with a fast-growing brain tumor. While the tumor sapped Emily's vision and the strength in her left side, it turned her mother into a fierce advocate. A magna cum laude graduate with a sharp mind, Valerie researched special education laws and ensured that Emily received the proper accommodations from the Worcester public schools.

“She's been my best friend pretty much my whole life,” said Emily, now 24 and a student at Harvard. “She was the most incredible mom you could possibly imagine.”

Three years ago, the mother who so tirelessly cared for her ill child received her own devastating diagnosis — leiomyosarcoma, a rare, resistant cancer. She had a radical hysterectomy in fall 2006 and the couple resumed performing. The cancer returned a year later, and then came Walter's diagnosis with prostate cancer. Last fall, Emily's liver surgery was scheduled around her mom's chemotherapy.

“I've had days when I could hardly put one foot in front of the other,” Walter acknowledged this week. “But it's self-indulgent and I can't afford to go there.” He paused. “Val was good at pulling me out of it.”

Walter survived his cancer, but knew that Valerie would not survive hers. Over the last year, the couple that was always first on the dance floor turned their attention to “collecting sunsets,” driving at dusk to hills in Leicester, Barre and Paxton. As usual, they meshed perfectly — Walter liked to drive, and Valerie preferred riding.

The night before she died, she was transferred to hospice and her son, Jackson, spent the night in her room.

“She told me she wanted me to finish my master's degree and be happy,” said Jackson, a graduate student at George Washington University. “She said she wanted to die peacefully, with no pain or fear. Then she told me to go to sleep because I was tired.”

The next day, Valerie was unconscious. Friends such as Chuck and Mud came and sang to her, the same musicians who would gather in the Crockett kitchen on Saturday nights for raucous jam sessions. Shortly before midnight on Sunday, with family by her side, Valerie died peacefully.

Now, Walter and his children are planning her memorial. It will feature lots of live music by the many men and women who loved Valerie Crockett and will long remember her effortless grace, charm and talent.

“Wherever we went, I always thought Val was the prettiest girl in the room,” Walter said. “She looked kind of different at the end. But she was still herself, still the beauty on the inside. We were very, very lucky.”

[Editor's note:  Valerie and Emily have been BSCB members since Emily was in high school.  When the Crocketts attended conventions, Valerie and Walter seemed to be everywhere at once, assisting conventioneers and making sure things were running smoothly.  We have lost a dear friend and tireless advocate.  Walter, Emily, and Jackson are in our thoughts and prayers.]   

 

Paula Bress, recipient of the First CarrollKids Award

 

It is with great pleasure that the Educational Services Department of the Carroll Center for the Blind announces the recipient of the first annual CarrollKids Award for Advancement of Student Literacy Through Quality Instruction. This award is given to a licensed professional who demonstrates exceptional leadership and high educational standards for providing direct and indirect services for students with visual impairments between the ages of three and 21 years.

This year's recipient is Paula Miller Bress, TVI/COMS.

Paula has been a Teacher of Students with Visual Impairments in the Boston Public Schools for many years. During the past decade she has been an adjunct
lecturer at Boston College and the University of Massachusetts in Boston, and in 2007 coordinated a Massachusetts Summer Institute on "Instructional
Methods for Increasing Accessibility to Elementary and Middle School Science Curricula for Students with Visual Impairments".

Since 2006 she has been a member of the Technical Advisory Committee for the TARA Project (Technical Assisted Reading Assessment), a joint initiative of
Educational Testing Service in Princeton, NJ, and the National Center on Educational Outcomes, University of Minnesota.

In 2006, Paula was the recipient of a Fellowship grant from the Fund for Teachers and the Boston Plan of Excellence which allowed her to travel to France
and the United Kingdom to study the development of the Braille Code. Paula is a long-time member of the Association for Education and Rehabilitation for the Blind and Visually Impaired and has served two terms as Regional Representative on the Board of the Association of Massachusetts Educators for Students with Visual Impairments.

She is recognized as a model teacher, one who leads by example and who mentors others just by being herself and by using her talents masterfully. Paula's numerous letters of nomination from colleagues, students, parents and administrators all described in great detail how her work as a teacher has influenced them in both personal and professional ways.

The Carroll Center's Educational Services Department joins with colleagues from around New England to congratulate Paula Miller Bress for her outstanding
contributions to the field of education for children with visual impairments!

 

OPTACON USERS UNITE TO PRESERVE VALUABLE READING DEVICE

By Catherine Thomas

 

The Optacon user list would like to share the following information with all current and former Optacon users.

 

1. The Optacons can still be repaired. There are repairers located in the U.S., Canada, England and Australia.

 

2. We are seeking all non-working or unused Optacons. These will be repaired and put back into circulation.

 

3. We invite all current Optacon users to fill out a brief survey describing their experiences both negative and positive.

 

4. If we can collect enough survey data, there is a possibility of re-developing the Optacon with modern circuitry to read some of the types of modern displays which other devices cannot read at this time.

 

5. There is a very active Optacon e-list where users share experiences and make plans for the future of the Optacon.

 

If you would like information or have any questions, please email braille@panix.com. Thank you.

 

WHAT IS AN OPTACON?

 

Invented in the early 1970s, the Optacon uses a hand-held camera to explore a print document and convert the picture of what it finds onto a small tactile array composed of vibrating pins. The tactile picture is very tiny--about the size of a standard print letter or number. With practice, the user can move the camera over the printed material and read the images on the tactile array. The Optacon was manufactured until the early 1990s.

 

ACB Scholarship Announcement

 

The American Council of the Blind (ACB) annually awards approximately twenty scholarships ranging in amounts from $1,000 to $2,500 to vocational, entering freshmen, undergraduate and graduate college students who are legally blind, maintain a 3.3 GPA and are involved in their school/local communities. 

 

Applications may be submitted beginning January 1, and all materials must be received by 11:59 PM Eastern Standard Time on March 1, 2010.  Scholarship monies will be awarded for the 2010-11 academic year.

 

To read the scholarship guidelines and complete an on-line application, please visit:

 

www.acb.org

 

For more information, please contact the ACB National Office at: (202) 467-5081 or (800) 424-8666.  We look forward to receiving your application materials!


BSCB Board Of Directors

 

Bob Hachey, President

Phone: 781-893-6251

e-mail: bhachey@comcast.net

 

Marcia Dresser, First Vice President

Phone: 781-944-3586

e-mail: mn.dresser@verizon.net

 

Chris Devin, Second Vice President

Phone: 617-472-0308

 

Jerry Berrier, Secretary

Phone: 508-845-9944

e-mail: jerry@birdblind.org

 

Rick Morin, Treasurer

Phone: 781-373-1044

E-mail: rick.morin@comcast.net

 

Kim Charlson, Director

Phone: 617-926-9198

e-mail: kimcharlson@comcast.net

 

Kathy Devin, Director

Phone: 617-472-0308

E-mail: kcdevin@verizon.net

 

Roz Rowley, Director

Phone: 617-923-1906

E-mail: skip1500@aol.com

 

Sharon Strzalkowski, Director

            Phone: 508-363-3866

E-mail: strzal@charter.net

 

 

Committee Contacts

 

BayLines Editor

Marcia Dresser

167 Green Street

Reading, MA 01867

Phone: 781-944-3586

Email: mn.dresser@verizon.net

 

Council Connection Host

Marcia Dresser

Phone: 781-944-3586

Email: mn.dresser@verizon.net

 

Legislative Committee Chair

Bob Hachey

Phone: 781-893-6251

e-mail: bhachey@comcast.net

 

Media Access Committee

Kim Charlson

Phone: 617-926-9198

e-mail: kimcharlson@comcast.net

 

Membership Committee Chair

Marcia Dresser

Phone: 781-944-3586

e-mail: mn.dresser@verizon.net


Chapter Contacts

 

Charles River Chapter

Brian Charlson

Phone: 617-926-9198

e-mail: briancharlson@comcast.net

 

Central Massachusetts Chapter

George McDermott

Phone: (508) 795-1118

e-mail: profrev@aol.com

 

Guide Dog Users of Massachusetts

Carl Richardson

Phone: 617-254-0425

e-mail: carl@carl-richardson.com

 

Massachusetts Alliance of Visually Impaired Students

Alison Roberts

Phone: 617-461-6077

e-mail: alison2911@comcast.net

 

South Shore Chapter

Kathy Devin

Phone: 617-472-0308

e-mail: kcdevin@verizon.net